Patients, the Public and Priorities in HealthcarePeter Littlejohns, Michael Rawlins Sharing the costs of ill health is the mark of a civilised society. However, every society has limited healthcare resources, and must therefore make finely balanced decisions on how best to allocate them. The National Institute for Health and Clinical Excellence (NICE) has been responsible for the UK's health resource allocation for a decade. To inform its decisions, a Citizens Council of 30 members of the general public was established by NICE to gauge the underlying values of the society it serves. A number of national and international organisations and governments have asked NICE to share its experiences in establishing and running the Citizens Council, and encouraging and supporting patient involvement. As part of NICE's response, this book provides an up to date 'position statement' on the Citizens Council, an exploration of how patients interact with NICE and how their views are taken into account, and a national and international perspective on new issues facing the interaction between patients, the public and healthcare provision. 'Reading this volume will enable you, the reader, to assess how well NICE is acting as a means of fostering responsible public choice. I hope you profit from its chapters as much as I have.' - Albert Weale in his Foreword |
Contents
NICEs commitment to patient carer and public involvement | 9 |
Patient involvement in NICE technology appraisals | 29 |
Patient involvement in NICE interventional procedures | 51 |
how well is NICE | 65 |
Ordinary people extraordinary wisdom | 81 |
implementing the Citizens Council | 109 |
The view of a Citizens Council member | 125 |
Accountability for reasonableness and the Citizens Council | 139 |
Harvesting and publishing patients unanswered questions | 165 |
some concluding | 181 |
Other editions - View all
Patients, the Public and Priorities in Healthcare Peter Littlejohns,Michael Rawlins Limited preview - 2018 |
Patients, the Public and Priorities in Healthcare Peter Littlejohns,Michael Rawlins Limited preview - 2016 |
Common terms and phrases
accessed accessed 22 September activities advisory bodies approach asked assess Available benefits challenge chapter Citizens Council Clinical Excellence committee condition consider consultation contribute cost effectiveness coverage decisions deliberation discussion disease drugs engagement ensure equality evaluation evidence example experience facilitators first give groups guideline Health and Clinical healthcare implementation important improve individual Institute for Health interest interventions issues limited London measures meetings National Institute NICE guidance NICE’s NIHCE opportunities organisations outcomes participation particular patient and public patients and carers population PPIP practice presented principles priorities procedure produce professionals programme promote public health public involvement published questions reasons recommendations REFERENCES relevant represent response September 2009 social value specific stakeholders systematic technology appraisal topic treatment uncertainties views