Healthcare and Big Data: Digital Specters and Phantom Objects
This highly original book is an ethnographic noir of how Big Data profits from patient private health information. The book follows personal health data as it is collected from inside healthcare and beyond to create patient consumer profiles that are sold to marketers. Primarily told through a first-person noir narrative, Ebeling as a sociologist-hard-boiled-detective, investigates Big Data and the trade in private health information by examining the information networks that patient data traverses. The noir narrative reveals the processes that the data broker industry uses to create data commodities—data phantoms or the marketing profiles of patients that are bought by advertisers to directly market to consumers. Healthcare and Big Data considers the implications these “data phantoms” have for patient privacy as well as the very real harm that they can cause.
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Accessed January Acxiom algorithms big data biocapital Biopolitics body Chapter clinic companies Corporation covered entities credit card CVS Caremark Corporation data analytics data brokers data collection data commodities data hygiene data image data marketing data ownership data privacy data revenant data things databased society datasets de-identified detective direct marketing disclose doctor doctor’s office drug electronic health record EMC Corporation Experian Marketing Services Experian plc Facebook Fair Isaac Corporation health insurer healthcare providers HIPAA hospital identifying IMS Health IMS Health Inc industry informed consent innovation January 9 legislation lives marketing baby mass surveillance network of disclosure Newborn Network Nichani Nissenbaum noir ownership claims patient data patient privacy platform practices pregnancy prescription data privacy rights Privacy Rule private health data produced regulations sell surveillance Target technologies third-party tion transactional data University Press Waldby York