Ethnicity, disability, and chronic illness
"This book brings together emerging work on ethnicity, disability, chronic illness and caring by leading researchers in the field. They explore the experience of minority ethnic people, and examine the conceptualization of disability and chronic illness and the implications of particular definitions; everyday living with a disability or chronic ill health; and the role of services in providing support to disabled people and carers." "In terms of policy and practice, this volume highlights the continued problems experienced by minority ethnic disabled and chronically ill people and their families. It shows that, although many of these users' experiences are shared with white users, the intensity and persistence of disadvantage that are faced by minority ethnic users can only be understood by reference to their racialized worlds." "This book offers both theoretical advancement and practice relevance in the field, and is essential reading for students, teachers and researchers in health and community care, disability studies, social work, nursing, public health, social policy and sociology. The book will also be of value to practitioners and policy makers in health and social services."--Jacket
Print Book, English, 2000
Open University Press, Buckingham [England], 2000
154 pages ; 23 cm.
9780335199839, 9780335199822, 0335199836, 0335199828
42009386
1. Introduction / Waqar I.U. Ahmad
2. Perceptions of disability and care-giving relationships in South Asian communities / Savita Katbamna, Padma Bhakta and Gillian Parker
3. 'Causing havoc among their children': parental and professional perspectives on consanguinity and childhood disability / Waqar I.U. Ahmad, Karl Atkin and Rampaul Chamba
4. Living with sickle cell disorder: how young people negotiate their care and treatment / Karl Atkin and Waqar I.U. Ahmad
5. 'I send my child to school and he comes back an Englishman': minority ethnic deaf people, identity politics and services / Waqar I.U. Ahmad, Aliya Darr and Lesley Jones
6. Language, communication and information: the needs of parents caring for a severely disabled child / Rampaul Chamba and Waqar I.U. Ahmad
7. Service support to families caring for a child with a sickle cell disorder or beta thalassaemia major: parents' perspectives / Karl Atkin, Waqar I.U. Ahmad and Elizabeth N. Anionwu
8. South Asian carers' experiences of primary health care teams / Padma Bhakta, Savita Katbamna and Gillian Parker