Front cover image for Healthcare and big data : digital specters and phantom objects

Healthcare and big data : digital specters and phantom objects

Mary F. E. Ebeling (Author)
This highly original book is an ethnographic noir of how Big Data profits from patient private health information. The book follows personal health data as it is collected from inside healthcare and beyond to create patient consumer profiles that are sold to marketers. Primarily told through a first-person noir narrative, Ebeling as a sociologist-hard-boiled-detective, investigates Big Data and the trade in private health information by examining the information networks that patient data traverses. The noir narrative reveals the processes that the data broker industry uses to create data commodities--data phantoms--or the marketing profiles of patients that are bought by advertisers to directly market to consumers. Healthcare and Big Data considers the implications these "data phantoms" have for patient privacy as well as the very real harm that they can cause
eBook, English, 2016
Palgrave Macmillan, New York, 2016
1 online resource
9781137502216, 1137502215
959617722
Printed edition:
Dedication
Acknowledgments
Contents
List of figures
Chapter 1: Out of death, a birth. Phantom data
A curious thing comes a-knockin'
My marketing baby, born of big data
The auto-ethnographic noir
Chapter descriptions
Notes
References
Chapter 2: The rise of the databased society. An industry you've never heard of
Where do the data come from?
Who has power over our data? Data brokers are worse than the NSA
The databased society
Notes
References
Chapter 3: Privacy and data phantoms. The biopolitics of phantom data
Lively data and vaporized privacy rights
Notes
References. Chapter 4: Coercive consent and digital health information. Patient privacy and the elimination of informational consent
Networks of disclosure under the three rules
Privacy and consent from below
Coercive consent in capitalist healthcare
Notes
References
Chapter 5: The biopolitics of lively data. The privacy promises and market values of anonymization
On the Internet, everybody knows you're a patient
Ownership defines us: the "value-add" of anonymization and how data ownership is claimed
Possession plus innovation equals ownership
Notes
References. Chapter 6: The uncanny lives of data commodities. Comrades
My body as data subject-object of biocapital
The data commodity comes to haunt me
I am not a baby
The immaterial gets "real"
Notes
References
Chapter 7: The body of evidence. Data paranoia
Experian owns us
Empathy and the violence of "dumb" data
Notes
References
Chapter 8: Life after death. The uncanny life of data
From the black box to the databased society
The noir ending
References
Index